Living with Epilepsy

Living with Epilepsy

Epilepsy is completely different for each and every person who has it. If you are living with seizures or recently received a diagnosis it can feel very lonely. One thing you definitely need to know is that you are not alone, ever. There are over 500,000 people with epilepsy in the UK alone, with around 87 people being diagnosed every day.

Living with epilepsy will take you on a rollercoaster of emotions and different experiences at any given point. The trick is to learn your triggers and manage them, as well as looking at how your lifestyle is impacting your health. Try not to compare yourself to others because there is hardly any consistency in epileptic seizures from person to person. Some might have only a handful of seizures a year, but others might suffer seizures daily. So make sure you look at your seizure-free time relative to your own body.

It’s important to learn about seizure first aid, no matter who you are. You can learn about supporting someone who is having a seizure by visiting the Epilepsy Society.

Living with epilepsy is about so much more than taking your meds on time and getting a good nights sleep. So often the focus of living with epilepsy is based on the science behind controlling our seizures, which makes sense and is perfectly understandable. But with no known cause in 50% or people, and no known cure for epileptic seizures, the topic of living with epilepsy covers much more than managing seizures.

Epilepsy impacts every aspect of your life so as well as talking about general seizure control, we also need to talk about dating and relationships, socialising and friendships, feeling isolated because of epilepsy and how living with epilepsy, even though it’s difficult, teaches us some of life’s most important lessons.

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